Support families  

• Link affected families with a medical center to receive needed care and advice
• Raise awareness about early genetic diagnosis in both families and future generation
• Regularly communicate with families and organize get together fun days
• Support social integration of affected children
• Empower children to live a normal life until a cure is found
• Share most updated multidisciplinary medical approaches to improve quality of life
• Share recent studies and findings on Neuro-Muscular diseases
• Provide medical equipments such as electrical wheelchairs, lifters, breathing/coughing machines
• Translate and distribute latest medical guidance booklets to affected families

 Awareness Raising

• Media outreach with TV & radio stations and social media
• Lobbying with government, including Ministry of Social Affairs and Ministry of Health
• Linkages with regional health care centres in the South and North of the country to reach affected families in remote areas
• Organising yearly Telethons with the French community in Lebanon in support of the Association française contre les myopthies (AFM) which focuses on genetic research to find a cure.
• Highlight rare disease day and world Duchene awareness day
• Screening of documentaries and movies

Fundraising through

• Personal contributions
• Fundraising events

Collaboration with local and international organisations 

• Treat- Neuro-Muscular Disease (Treat-NMD)
• Parents Project Muscular Distrophy meetings (UPPMD)
• World Duchenne Organization (WDO)
• Eurordis and AFM (L’Association française contre les myopathies)
• Sesobel & Tamana